Rabble is currently going through chemotherapy for early stage breast cancer. The journey we've both been on has been three months in the travelling thus far, from initial diagnosis to surgery to chemo, of which she's had two sessions with the third in 10 days time. Six treatments in all, three weeks apart. Then comes radiotherapy which will doubtless bring it's own complications, but right now it's the chemotherapy and it's effects which are impacting on both of us.
I've decided that I can't simply be a passenger on this journey, even though there is very little I can do, as a male, to make the journey any swifter. I've begun searching for stories similar to ours, where the emotional feedback created by the chemical cocktail surging through my wife's body engenders mood and persona changes in my partner the likes of which I've never experienced before. I came across
this piece on the Breast Cancer Network Australia site, and immediately felt some kindred affinity for the author.
I too am 'male', a 'fixer' and avoided the in-depth research of the disease preferring to simply remain informed of the scenery passing us on the journey. That's not enough for Rabble. She expects me to be right up there with her on this journey, wrapped in the treatment regimes, even acting as the pourer of oil on her troubled waters. The difficulty for me is that I don't understand her troubled waters, I can't measure the peaks & troughs and don't believe we're travelling the same ocean together. I'm uncomfortable in and around hospitals. My father died in a hospital from a staph disease rampant in that hospital and I personally have little faith in the wonders of medical science. Thus far, neither of us are terribly enraptured with the Oncologist or Radio Therapist, even though the coal-face nursing staff are excellent. The doctors and scientists know three-fifths of seven-eighths of sweet bugger all about breast cancer as a disease, but they do know that chemotherapy, radiotherapy and surgery are valued adjuncts to defeating the disease from a reactive perspective. The day may come when a definitive causal factor behind breast cancer is known, but that's a long way off. They are a breed I cannot accept as genuine helpers, only as highly paid, somewhat arrogant, overseers of the real workers, the nursing and care staff.
My preference for being a passenger on this journey has created a gulf between us. The fact that I feel my contribution of continuing to work at a job I absolutely loathe, which generates barely sufficient income to keep us afloat, just doesn't seem enough. Combine that with a misunderstanding on her behalf that my 'fixer' attitude is a negation of the responsibility of physically being with her through each and every chemo treatment, resulting in her belief that I've abandoned her to the treatment, and the result of our relationship is one where she feels the need to emotionally divorce herself from me in order to concentrate her emotional energies on her own positivity in order to get well. I'm probably not explaining this very well, and in truth, I don't really understand what's happening anyway, but Rabble has lodged an application with Centrelink for increased disability pension on the grounds that we are seperated while living under the same roof. As she put it, she's leaving me. The intent being to aid in resolving what she perceives to be money worries which I have, causing my concern about money to impact on her recovery from breast cancer and it's treatment regime. I genuinely don't care about the money. We've had tight squeaks before & we'll have them again. Right now, we're doing okay. Not lavishly okay, but the mortgage is getting paid and there are no dragging bills that I know about.
I don't like it, I don't understand it and the frustration level on my part is very high. I don't get that being a passenger - being with her on this journey - isn't enough. I don't get that wanting to maintain as normal an existence as possible during these difficult times is somehow as abnormal as is possible. I'm married to the woman I love with all of my heart and soul. If I have a soul, which I'm beginning to doubt. Clearly, I can't have because the message I'm getting is that I don't care. I'm confused, angry, sad, frustrated, directionless all at the one time. I thought this journey was just her & I, but apparently there's family and friends along for the ride as well and I seem to have been allocated to a back seat somewhere distantly removed from where it's all happening.
However, I'm refusing to take that back seat. I refuse to be "legally seperated" from the woman I love, care for and about, my friend and support, my partner for life simply because she thinks I worry about money. I don't. I couldn't care less about money. If the worst possible happens, then it happens. My only focus is on her getting well and if that means I re-take my seat alongside her, shove the family & friends aside, go along to each and every chemotherapy session, each and every radiotherapy session, then so be it. I may have a job that shits me to tears, but at least I have the imprimatur of my employer to do whatever is required by way of support. He may be a dickhead, but at least he's a thoughtful dickhead.
At the end of the day, I'm male and I make no apologies for my gender. I can't change it, or who I am. I can't think like a female, much less a female suffering the privations of chemical invasion. I can be there and physically show that I care, and am trying so very hard to understand. I remain unconvinced that being there and showing that I care will be enough, but it's all I can do. If anyone reading this has any suggestions, then please come forth with them. Critique or comfort, I don't mind. My psyche has been beaten into submission and won't be likely to start punching anyway.